Monday, May 28, 2012

Grumpy old fart head


Hello!

Last Monday of May, feel time is flying fast and I am not going anywhere with these modifications that never happen. I have left messages to my occupational therapist regarding the new quote that the government wants and she hasn’t called me back…Somebody tell me something!!!  Obviously you have to be in the shoes of somebody to see what they are going through! I’ve been stuck inside this place for 3 years plus the 2 other ones I spent when I was at the other place; it’s like so close and yet so far! Argh!! I feel useless, my brain still works…sort of…and I feel I could do more but I can’t!! Did you know that everyday I visit the MS Society of Canada just to see if there's something new, a cure perhaps or a stupid treatment that would make me feel the touch of my daughters?? You wanna know how I feel? The below text is part of my reflections on this stupid illness….

I cannot move, but my mind is running.
I cannot talk, but my soul is screaming.
I cannot feel, yet my heart is broken…

This is what MS is to me, this is what I think day in, day out!! Is not only physical but it’s a mental thing that I must endure everyday, if it wasn’t for sleep I would probably go nuts…. Any hoots, I know this is my life and even though I didn’t ask for it to be this way I have to live it, endure it…

Take care folks!!

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